HEALTHY LIVING CAMPAIGN IN SAGAMU AND ABEOKUTA, OGUN STATE, NIGERIA
Randomly,we chose the ancient city of Abeokuta, the capital of Ogun State and Sagamu, a semi-urban local government area in Ogun State.
HEALTHY LIVING CAMPAIGN IN SAGAMU AND ABEOKUTA, OGUN STATE, NIGERIA
Randomly,we chose the ancient city of Abeokuta, the capital of Ogun State and Sagamu, a semi-urban local government area in Ogun State.
MY MEANING OF DIABETES AND MY PERSONAL EXPERIENCE
Since our last meeting with Omolade our relationship has improved drastically, with her mom attestating to the tremendous changes and her improved attitude to health.
So we asked her to reflect on how it has been to date (Her Journey so far) and she dropped us this letter.
MY MEANING OF DIABETES AND MY PERSONAL EXPERIENCE
Diabetes to me is a disease that does not enable my body to provide insulin and does not enable my body to store glucose to glucogen Or A non-communicable disease that can only be transferred through traits or heredity.
MY BRIEF EXPERIENCE OF THE DIABETES DISEASE
On the 13th of august 2012 I realised I am diabetic but because it was new to me and due to my worries all the time i am always saying that there is someone behind my condition and I am always putting myself into crisis, scared, thinking, crying and always running away from people.
When I met My Clinicians and the NGDOC Team this year, they explained a lot to me that many people around the both whites and blacks have diabetes and are living well so I need not to put myself into more crisis.
They said by taking my insulin regularly I will be preventing a lot of problems for myself and my family.
I now have become shy and so happy when I saw people from all over the world on the system, in the books and mobile phone. I realise I need to cope with my diabetes and leave the rest to God Almighty to take control of all.
I have hence begun to rejoice with all the choices of mine, thanks to my doctors and the NGDOC team.
You can read our previous post on omolade here
If you know any Type 1CWD please contact us
HEALTH AND POLITICS
Health is the level of functional or metabolic efficiency of a living being. In humans, it is the general condition of a person’s mind and body, usually meaning to be free from illness, injury or pain.
Health is of major concern to nations of the world. WHO and the member states strive hard to ensure this is achieved across board. A major WHO goal is to improve equity in health, reduce health risks, promote healthy lifestyles and settings, and respond to the underlying determinants of health.
This among others are the goals expected to be followed by member states and organizations.
A lot has been invested in terms of resource on health in the continent with little impact and Africa being a toast of many investors has to be self motivated towards adequate care especially in health for her citizens.
So what happens inbetween agreements, implementation and feedback: The Politics of Health;
DIABETES CARE IN NIGERIA : THE WAY FORWARD
On the 28th of April The Nigeria Diabetes Online Community and Diabeticare International in their usual style had a 1hour tweetchat that aimed at discussing the way forward in diabetes mellitus care in Nigeria.
There has been a progressive increase in the prevalence of diabetes mellitus in Nigeria and the burden is expected to increase even more. Considering this fact there is an urgent need to examine our healthcare systems, work on existing programmes for persons with diabetes and effectively implement a process that facilitates accessibility to such.
This discussion that pulled interested participants from Nigeria and beyond was aimed at getting opinions and suggestions that are people oriented towards forging ahead in our clamour for quality health care services and delivery in Nigeria.
Five questions were thrown in the chat. Responses are summarized
1st QUESTION: On a scale of 1-10, how would you rate DM (Diabetes Mellitus) care in Nigeria and why?
Diabetic care in Nigeria is very poor because it is reactive rather than proactive. Prevention should be a key strategy
2nd QUESTION: how do you think NGOs can help with DM care and T2 (type2) DM prevention in your community?
Access to information & education is key. People can be empowered to be advocates for change in their own #diabetes communities
Education is key; insulin without education is like a car without a steering wheel and of course access to supplies is essential: affordability & availability are major issues in many countries, especially rural areas.
NGOs have more ability to influence education in a sustainable fashion and can help through health education programmes and the organisation of peer support groups for affected individuals
Crucial programs need to consider local customs & culture – involving #youth is essential!
Founders of t1 international and 100 campaign (international NGOs dedicated to T1DM CARE and promotion of access to insulin by all by 2022) our partners find it hard to believe that insulin is still so expensive – they believe insulin should be a human right.
3rd QUESTION: How can Health care providers enhance adequate support for people with D (diabetes)?
There should be more awareness and education provided in the communities
Pressure needs to be put on the pharmaceutical Companies – Diabetes is not a money making scheme
Connecting them to others. Empowering people to realize they can live a normal life, without limitations
By working together we can achieve this! We can learn from other movements. Strength in numbers & empowered groups
Individualising the treatment is key. Proper education of patients with Diabetes and making them partners in their own treatment
4th QUESTION: What role can the food, drinks and beverage industry play in DM care and prevention?
The food, drink and beverage industries need to be properly regulated!
Remember type1 is about a lack of insulin nothing to do with food types – watching food groups helps maintain better blood glucose control
Although food, drink & beverage industries do play a role in the lifestyles of people (& co morbidities), more sugar free alternatives of common beverages should be made available
5th QUESTION: In what ways can ‘WE’ increase community awareness on a large scale?
TV campaigns or radio jingles on Diabetes happen to be important means of mass education and this can be linked to a local community (health/ fitness) prevention event.
Empowering local role models with diabetes.
recognizing the basic symptoms and encouraging a healthy lifestyle for all
All forms of media (TV, Radio, Print, and Social) will help with the awareness. Currently very little is being done through them.
In lieu of this we at the Nigeria Diabetes Online Community hope to partner with individuals and organizations who see a need to propose and effect change in the Nigeria Healthcare system towards adequate Diabetes Care.
Thanks to all our Nigerian participants and our international friends who graced the meeting and also participated through great ideas and suggestions.
Omolade is a 13 year old Nigerian Type 1 DM.
For her having Diabetes Mellitus wasn’t something she bargained for. Meeting with her was facilitated through our collaborative partnership with the Paediatric endocrinology department of the Olabisi Onabanjo University Teaching Hospital (O.O.U.T.H), Sagamu, Ogun State, Nigeria.
Dr. Mrs Fetuga (Consultant Peadiatric Endocrinologist and Omolade during one of her clinic sessions)
Diabetes mellitus type 1 (also known as type 1 diabetes, or T1DM; formerly insulin dependent diabetes or juvenile diabetes) is a form of diabetes mellitus that results from autoimmune destruction of insulin-producing beta cells of the pancreas. The subsequent lack of insulin leads to increased blood and urine glucose.
The classical symptoms are frequent urination, increased thirst, increased hunger, and weight loss. (source wikipedia)
Tears of joy flowed through her eyes as she went through our album of PWDs all over the world who identifies with her, understands how she feels and sees her as family.
Omolade is a girl filled with bitterness wondering why God had given her a disease she has to live with forever despite adequate explanation and support from her HCP.
Her hope was re-kindled knowing and practically seeing that she is not alone and she has thousands of children like her all over the world with T1DM, including adults.
This gives us an idea of a need for peer support for T1 PWDs in Nigeria where everyone can relate, interact and socialize.
Speaking with her mom about the financial implication on the family, she explains she spends N1,400 ($9) per vial and omolade uses 6 vials in a month making a total of ($54); this excludes the cost of glucometer and consumables.
This cost for a low income family in a developing country is burdensome and we aim through our partners to make this available thereby putting a smile on Omolara’s face and that of the family.
We have been in constant touch since our meeting on the 4th of April and we have seen the joy associated with having a family united by D.
We wish to use this medium to appreciate the Peadiatric Endocrinology unit of Olabisi Onabanjo University Teaching Hospital, Sagamu, Ogun State, Nigeria for their support.
For every Nigerian T1DM Child we are committed to giving them the support they deserve.
Here’s a call to HCPs, Health Care Givers, Diabetes Advocates and PWDs to identify with T1 children towards giving them the emotional support needed to encourage and motivate them towards a proper self management of D.
Do you know any Type 1 Nigerian Child please feel free to inform us.
Follow us on @theNGdoc or email us firstname.lastname@example.org
According to the international Diabetes Federation diabetic Atlas; Diabetes Mellitus is one of the most common non-communicable diseases (N.C.D) globally. D.M, is the fourth leading cause of death in most high-income countries and now there is substantial evidence showing that it is epidemic in many economically developing and newly industrialized countries.
Africa, a multicultural, religious and ethnically diverse continent had traditionally been dominated by infectious diseases but with rapid urbanization, NCD’s are quickly becoming a priority for health in this continent; with an estimate of about 14.7 million Adults being diabetic in 2011 and a projection of 28.0 million by year 2030.
According to I.D.F, financial estimate of Africa indicate that at least USD2.8billion was spent on health care due to diabetes alone in 2011 and this is expected to rise by 61% in 2030. It is however imperative, based on the facts above as health care givers and stakeholders to firstly understudy Africa with its peculiarities and strategize a befitting and appropriate health care system that put into consideration and accommodates the African mindset.
This health care system must understand Afric’s multicultural settings,religious inclinations and embrace its ethnic diversity.
FACTORS AFFECTING DIABETIC CARE AND POSSIBLE SOLUTIONS
Africa, a developing continent is characterized by multiple factors that has plunged the continent into an era of economic and social setbacks and this has slowed down the rate of health care delivery in the continent. Factors influencing African health care delivery noteworthy include:
Vast majority of Africans anchor their belief to A Supreme Being who is held in the highest esteem with instructions and guidance being handed over through HIS representatives to the followers. These representatives are called clergy. African religious setting is multifaceted and has been a great influence on lifestyle and philosophy.
Some believe diseases and ailments serve as a punishment for wrongdoing or an attack. The role of religion in diabetic care cannot and must not be underestimated as it plays a major role in the attitude of individuals and the community to diabetic care. In view of this, community diabetology should be encouraged with individual communities coming up with programs that put into consideration religious beliefs perculiar to such community. Diabetic education and enlightenment should also be integrated into all religious institutions.
According to UNESCO Africa fact sheet: 176 million Adults are unable to read to write. 47million youth (age 15-24) are illiterates. 21millions adolescents are out of school and 32 million primary aged children are not in school. The fact above reflects a continent with poor educational foundation for both the adults and the youths (future leaders).
Education is paramount to information dissemination and economic Growth International design of diabetic care and education should be revisited with the inclusion of more flexible and grass root friendly Programs. To an average uneducated African, “the absence of disease is Health” as against the W.H.O Definition of Health and this mentality coupled with cultural and religious belief system on disease affect preventive medicine in Africa. To a large extent, people don’t tend to complain until they start noticing complications; this added to the silent nature of D.M results in the highly complicated D.M found at hospitals.
African culture is varied and diverse. With the introduction of westernization, Africa’s age long culture and traditions are being substituted for western styles. This with urbanization has to a greater extent made Diabetic Care progressive in Africa i.e. through the media, internet, community research and community screening. In light of these remarkable progress; styles, trends and culture that promotes preventive care in diabetic health care should be considered in Africa
According to a UN report- Half of the population of Africa lives below a dollar a day. 32 of the world’s 38 heavily indebted poor countries are in Africa (World Bank). Slums are homes to about 72% of urban citizens.
These alarming facts reflects a continent where half of its population can’t boast of good feeding habits, good social status and most importantly access to quality health. Procurement of drugs and the ability to afford healthy diets are difficult by people who live below a dollar a day. Hence, diabetic care should involve Philanthropists, Non-Governmental organizations, Societies, Governments and pharmaceutical companies who through serious effort and commitment would empower the continent economically.
Also, I.D.F through its national bodies in Africa and affiliates should engage government into subsidizing drugs to make them affordable, available and extremely cheap such that majority of the African populace can have access to it and afford it. This will make life easier for those suffering extreme hardship in Africa
Finally, it is imperative I point our attention to a silent but serious issue in Africa: Medical ethics and trado medical ethics. Africa, unlike many developed continents where rules and regulations guide healthcare delivery system is faced with a challenge.
The trado medicals (groups of people that use herbs in treating medical conditions) are generally not well structured and not aligned with the medical professionals.
This has for a long time been a major issue of contention with people being deceived in the ability of a single drug to cure all ailments in existence. ‘Gbogbonise’ – A drug for all ailments as it is called, has been largely marketed and sold amongst the uneducated in the community, with even a small fragment of the educated patronising them giving false hopes of a permanent cure to D.M and this has accounted for high percentage of late presentation at the hospitals.
To forestall these activities, it is important to involve, train, and educate the tradomedicals on diabetic care and this I strongly believe, will go a long way in stopping the menace constituted by late presentations at clinics. In addition, a structure can be put in place by the African government and leaders for the tradomedicals which will spell out the ethics of their profession and limit the unprofessionalism demonstrated in the community.
Various Tradomedical Schemes At Marketing Drugs in Nigeria
In conclusion, the peculiarity of the African continent requires calls for a more radical and strategic approach in diabetic care with health care givers, researchers, government, and NGO’s understanding the challenges posed by the factors and putting these into consideration in developing a plan in diabetic health care delivery for the continent.
IDF Diabetic Atlas (5th Edition)
From the IDF africa Newsletter 2nd edition
Nigeria typifies the classical example of living with Diabetes in a developing country where Diabetes is considered a social stigma and people are not eager to be termed or associated with it.
Developing countries like Nigeria have their peculiar challenges especially when such countries are still battling with communicable diseases and with increase industrialization opening doors to spread of T2DM.
We decided to take an innovative step by interviewing Mr Bolaji Lawal @BabanMoh , An investment banker with specialty in fixed income securities, capital market investment and corporate finance. He is a Type 2 Diabetic and resides in Port Harcourt (South South, Nigeria).
@theNGdoc: Brief Introduction of you sir and a summary of your journey so far as a PWD
Ans: I realized I was diabetic in December, 2010 after receiving malaria treatment and realized I was losing weight,My HCP quickly conducted a series of tests and informed me I was diabetic, he placed me on drugs
@theNGdoc: How has Living with diabetes affected your day to day activities?
Ans: Initially it was difficult but as I understood and got used to living with D,it became easier. Am hardly affected now.
@theNGdoc: How has the Nigeria health sector being able to improve your living with D?
Ans: I am eternally grateful to the University of Port Harcourt teaching hospital for saving my life.
@theNGdoc: Does the Health Care play any role in managing and preventing Type 2 Diabetes in your area?
Ans: Doctors in private practice need more training on management of DM,they can identify it easily but management needs improvement
@theNGdoc: What are the challenges faced by PWDs in Port Harcourt, Nigeria?
Ans: Quite a number but so many people are dying in Port Harcourt because of lack of proper management
@theNGdoc: Does the Health Care policy of Nigeria recognize the International Diabetes Charter of Rights and Responsibility of people living with PWD?
Ans: Please what is the Int’l Diabetes Charter of Rights and Responsibility about?
@theNGdoc: What ways can the Nigeria Diabetes online community, International Communities and Federal Government of Nigeria affect and help improve lives of PWDs in Nigeria in addition to activities already on ground.
Ans: Encourage a national weight loss program 2.Compel manufacturers to write the health risk on soft drinks, @DiabetiCare: @BabanMohD food and drinks industries in Nigeria should alert the masses on the health hazards linked to fizzy drinks jst like d tobacco ad does #ngdoc
@theNGdoc: We hope this interview serves as an eye opener and encourages other PWDs to speak out.Thank You all for your time Mr Bolaji Lawal
Thanks, pleasure is mine. Also like to extend my appreciation to Dr. Korubo and his team in Uniport Teaching Hosiptal
The purpose of this interview to encourage as many PWDs to identify with the Global diabetes online communities for care and support and to also help as many national and international organizations interested in Diabetes prevention (T2DM) and care (T1DM and T2DM) in developing countries get access to information directly from PWDs.
Full transcripts of the #tweetinterview can be gotten here
We are currently working on promoting the International Diabetes Federation Charter of Rights and Responsibilities of PWD in Nigeria
A big thank you to those that joined the #tweetinterview on the 1st of April 2013 @theNGdoc
We also wish to appreciate Mr Bolaji Lawal for being a part of this event.
Type 1 diabetes is a type of Diabetes Mellitus characterized by loss of the insulin-producing beta cells of the islets of Langerhans in the pancreas, leading to insulin deficiency, it can affect children or adults, but was traditionally termed “juvenile diabetes” because a majority of these diabetes cases were in children.
The true burden of T1DM is not really known, but a difference in the pattern and outcome of T1DM in Nigeria compared to other developed countries seems to be present.
Most DM screening data available is not population-based and is of limited value for making generalizations about Diabetes in the Nigerian Children.
According to Dr. Mrs Fetuga,Consultant Pediatric Endocrinologist at the Olabisi Onabanjo University Teaching Hospital in South-West Nigeria who researched into the prevalence of Type 1 Diabetes Mellitus cases at her center, only about 8 cases of T1DM have been seen with most presenting with Diabetic Ketoacidosis (a potentially life-threatening complication in people with diabetes, it happens predominantly in those with type 1 diabetes, but can occur in those with type 2 diabetes under certain circumstances. DKA results from a shortage of insulin; in response to which the body switches to burning fatty acids and producing acidic ketone bodies that cause most of the symptoms and complications).
We wondered if T1DM is actually rare in Nigeria or our pattern of screening that excludes children vis a vis poor awareness of DM & its types among natives are responsible for the low data on T1DM.
She also raised concerns about poor knowledge and awareness of T1DM among mothers making it difficult for them to even explain what is wrong with the child when symptoms are demonstrated (loss of weight,frequent urination,increased thirst and increased hunger)these symptoms may develop rapidly (weeks or months) in type 1 diabetes.
Most parents also default follow-up after treatment with a high level of non-compliance to insulin use..
The International Diabetes Federation “Life for a Child” Programme was established in 2001 with support from the Australian Diabetes Council and HOPE worldwide and is an innovative and sustainable support programme in which individuals, families and organisations contribute monetary or in-kind donations to help children with diabetes in developing countries.
Here’s a call to HCP, Advocates, PWD to clamor for a more active community research into the epidemiology of T1DM in nigeria, passionate awareness, care and proper advocacy.
We at @theNGdoc are resolved towards committed advocacy for T1DM as well as the other types of DM and would appreciate any information on any child diagnosed of T1DM.
We are currently partnering with Elizabeth of T1international and the endocrinology unit of the pediatric department of Olabisi Onabanjo University Teaching hospital towards creating adequate grass-root awareness and proper care for T1DM children in Nigeria.
With these collaborative efforts we hope towards promoting grass root awareness for T1DM in Nigeria and adequate care for those with it.
To reach us please follow us on twitter @theNGdoc or send us an email email@example.com
Lets Keep the Hope Alive.
Image Credit: everynigerianchild
WORLD DIABETES DAY CHAT NOVEMBER 14, 2013.
According to the International Diabetes Federation, health in sub-Saharan Africa has been traditionally dominated by infectious disease, HIV/AIDS, and poverty. With rapid urbanisation, non-communicable diseases (NCDs) like diabetes are quickly becoming a new priority for health in the region. As urbanisation increases and the population ages, diabetes will pose an even greater threat.
In 2011, 14.7 million adults in the Africa Region are estimated to have diabetes, with a regional prevalence of 3.8%. The range of prevalence (%) figures between countries reflects the rapid transition communities in the region are facing. The highest prevalence of diabetes in the Africa Region is in the island of Réunion (16.3 %), followed by Seychelles (12.4%), Botswana (11.1%) and Gabon (10.6%). Some of Africa’s most populous countries also have the highest number of people with diabetes, with Nigeria having the largest number (3.0 million), followed by South Africa (1.9 million), Ethiopia (1.4 million), and Kenya (769,000).
Africa is currently the second largest mobile phone market after Asia, with more than 700 million mobile connections and a projected rise to almost 1 billion by 2016. More people on the continent have been introduced to the internet via mobile phones, and currently, Africa’s mobile data usage amounts to 14.85% of the total internet traffic – second only to Asia. In view of this, social media health platforms are rising with social media becoming an integral part of modern society fostering a more intense, engaging and democratic discussion. Social media has moved beyond being a tool for young individuals to share their private lives (pictures, messages) to fostering serious discussion on technology, health and business.
The diabetes online community in Africa started up with Nigeria and South Africa joining in the world diabetes day 16hour twitter chat in 2012 organized by the Diabetes Social Media Advocacy in the United States of America, (http://diabetessocmed.com/). This chat featured about 6 countries, 449 participants, about 5 thousand Tweets, 6million impressions and reaching over 14 million people.
With Africa’s mobile subscriber base estimated to grow annually by a significant 30 percent, utilization of social media in establishing online health peer support communities in Nigeria and Africa has helped create awareness, educate and act as a great social media peer support.
To celebrate this year’s World Diabetes Day (WDD) on November 14, the Global Diabetes Communities spearheaded by The Diabetes Community Advocacy Foundation formerly Diabetes Social Media Advocacy is coordinating a 24 hour global twitter chat for diabetes awareness and to celebrate the world diabetes day.
This 24hour twitter chat which will involve diabetes organizations like the Australian Diabetes online community, Blueprint Barbados,100 Campaign, Great Britain Diabetes online community, diabetes daily , diabetes hand foundation and the Nigeria diabetes online community aims at achieving a global conversation on the state of diabetes care.
The Nigeria Diabetes online community will be moderating the chat from 3pm-4pm E.S.T (9pm-10pm local time) and we will be discussing the Theme: Diabetes Prevention and Care in Nigeria: the past, present and future.
This is a clarion call to all people living with diabetes, diabetes advocates, and health care providers, government health agencies to join the global diabetes movement and get their voices heard.
The Chat will run from 0:00hrs -24:00hrs E.S.T (5am Nov 14- 5am Nov 15 local time). Join the Nigeria diabetes online community from 8pm-9pm Nov 14 as we discuss issues pertaining to diabetes in the continent.
Adejumo Olamide Hakeem
BLUE FRIDAY PERSONALITY OF THE WEEK
In November 2010, Cherise Shockley cordinator of @DiabetesSocMed founded the Blue Fridays Initiative to spread the word about World Diabetes Day and Diabetes Awareness Month.
Diabetes is more than just a national issue; it is a world epidemic. Blue Fridays brings the global diabetes community together to raise awareness and celebrate World Diabetes Day.
Cherise received several emails and Facebook messages asking her to extend Blue Fridays and in december 2011, she honored the request she received from many people throughout the diabetes community by asking everyone to wear something blue every Friday.
Inspired by the Cherise’s #bluefriday success @hadejumo started the blue friday personality of the week #bluefridaypow where he aimed at showcasing and profiling people every friday who are dedicated to creating diabetes awareness as a way of promoting diabetes awareness, blue friday and reducing the stigma associated with diabetes in nigeria and africa in general.
This program which featured so many people (PW/OD) was generally accepted by nigerians and henceforth will be continued (from the 14th of March, 2013) by @theNGdoc and @diabeticare.
If you are a PWD,a Diabetes advocate or an interested individual and you want to be featured as our #bluefridaypow (Blue Friday Personality of the week) send your Your Name, when diagnosed if a PWD if not skip, your activities, profession, works (blogs, research or articles on D) or what you do generally!
Should you have any quotes or sites we can quote from, we’d gladly do that.
Send a picture of you in blue and with answers to the questions above to firstname.lastname@example.org.
Expect a responce from us within 3 working days.
More info on WDD Blue Fridays Initiative bluefridays – Diabetes Social Media Advocacy can be found here
Thank you and keep the awareness alive.