It is with a heavy heart that I share the tragic story of a promising young boy with type 1 diabetes.
I met Durojaiye Bola through the Pediatric Endocrinologist of The Olabisi Onabanjo University Teaching Hospital (OOUTH) a year ago. This meeting coincided with our peer support program for children living with diabetes at the same institution where we met online with Jack Terschluse of Penpals United.
Although Durojaiye was diagnosed with Type1 diabetes his family was without the means to support the expense of his treatment and medication. He was on our list for support, next in line to Omolade who, thanks to T1International through its diabetes warrior initiative underwent a vocational training to help her pay for her insulin needs and later a partner NGO called Priceless Jewel, now supports with her insulin and university education from a kind philanthropist.
If only we had been able to support Durojaiye sooner. Last Friday I followed a friend to the ER of the teaching hospital and found him with burn scars on all of his limbs.
Apparently Durojaiye had fallen into an hypoglycemic coma at a religious center. In a bid to bring him back to life, his digits were burnt badly in fire by the religious members. This shock reminded me of the huge importance of educating religious leaders on diabetes. The NGdoc submitted a project proposal 2 years ago to a foundation for support of such an education initiative but unfortunately we never got the funding.
Right now Durojaiye has been referred to a plastic surgeon in a bigger hospital with the possibility of amputation. With tears on their eyes his parents told me categorically that they cannot afford it. They said that sending him to another hosptial will be like a death sentence.
A team was constituted by NGdoc with initial finances being given by the association. The team also has support from T1international.
The aim of the team is to ensure:
1) Optimal care for Durojaiye, including psychotherapy and rehabilitation
2) Financial support to cater for a substantial part of his bills
3) A strategy to prevent such occurrences from happening again
4) An advocacy plan to ensure liable children with diabetes have access to insulin and other essential consumables.
The team is comprised of:
Adejumo Olamide – NGdoc/Access Alliance
Elizabeth Rowley – T1International/Access Alliance
Odewale Ibironke – NGdoc
Dr Adekoya Adesola – Pediatric Endocrinologist/NGdoc Social peer support for CWD in OOUTH coordinator
Dr Ajose Femi – Surgery
Dr Safiriyu Isreal – Medicine (Endocrinology)
Adesanya Adebukonla – Medical Student
This is a clarion call to the Global DOC. There must be more focus on Africa. How many young boys and girls in Africa must go through the same traumatic experience before our community takes action?
We need to address poverty, lack of access and lack of diabtetes education. We must support community based organizations centered around caring for people with diabetes, encourage social peer support and help make the lives of children living with diabetes a meaningful one.
Last year the whole world ‘Put the World Back’ in World Diabetes Day when #insulin4all was launched.
This year The Nigeria Diabetes Online Community is proud to be a member of the Access Alliance and the global force standing together to push for access to diabetes supplies, care, and treatment for all.
Together as Nigerians ‘We are the World’ in World Diabetes Day.
We support #insulin4all because we believe no Nigerian child living with diabetes should die as a result of lack of insulin – a life saving medication.
NGdoc volunteer – Dr Olamide Ajayi and brother showing their support for #insulin4all
The Nigeria Diabetes Online Community is excited to partner with T1International on its Diabetes Warrior initiative.
The Type 1 International setup the Diabetes warrior initiative with the aim of training Nigerian children living with type 1 diabetes on vocational skills towards self sufficiency and ability to afford their medicines.
A warrior is defined as ‘a brave or experienced solder or fighter’. It is believed that those who are sponsored for vocational programs are experience fighters of diabetes and are prepared to put in the work it takes to not let diabetes dominate their life.
Our pioneer diabetes warrior is Omolade Onafowokan who is currently undergoing her part time weekend only vocational skills training in Ogun State, Nigeria.
Her demonstration of great awareness and acceptance for living with type 1 Diabetes is highly impressive. She has accepted her living with diabetes and hopes to further her studies after the holidays into the University where she aspires to study medicine.
In her own words having expressed a profound thanks to T1International for the kind gesture, wants to start a network of children living with diabetes where they can learn from one another and form a social peer support club.
We believe that through this skill acquisition she might be able to generate some funds to ensure a steady supply of her essential medicine – Insulin.
Visit here to support T1International’s effort aimed at helping children living with diabetes in Africa.
According to a new study published August 27, 2015 in the Journal of Clinical Endocrinology and Metabolism by Kristian Hallundback Mikkelsen, MD, a PhD student at the Center for Diabetes Research, Gentofte Hospital, University of Copenhagen (Hellerup, Denmark) and colleagues; there are suggestions of a clear link between Type 2 diabetes mellitus and the number of times a patient has been prescribed antibiotics.
Data from three national Danish registries revealed that prior exposure to antibiotics was associated with a 53% increased risk of developing type 2 diabetes (170,404 patients with Type 2 diabetes and 1.3 million who did not have the disease).
The finding could mean that antibiotics play a direct causal role in type 2 diabetes or that people with as-yet-undiagnosed diabetes may have a greater risk for infection and therefore are more likely to use antibiotics.
“Both interpretations are supported by the literature and could contribute to the observed associations,” Dr Mikkelsen told Medscape Medical News.
They found the risk of getting diabetes was highest in those given antibiotics that are effective against a narrow range of bacteria.
Study author Dr Kristian Mikkelsen said: “In our research we found people who have Type 2 diabetes used significantly more antibiotics up to 15 years prior to diagnosis compared to healthy controls.”
Dr Mikkelsen, of Gentofte Hospital in Hellerup, Denmark, also said more research was needed because the findings did not prove that the drugs trigger diabetes.
Antibiotics, the main way of treating infections for more than 60 years, can alter the bugs living in the gut.
Some of these bugs may contribute to the impaired ability of people living with diabetes to metabolise sugar.
But an alternative explanation could be that people with undiagnosed diabetes may be more prone to infection and therefore use more antibiotics.
Clinically, the findings add a new argument to the current movement toward less frequent and more judicious use of antibiotics.
“Microbiologists frequently remind clinicians not to overuse antibiotics because of the growing resistance problems and inadequate development of new antibiotics. If it appears that antibiotics also have long-term and potentially negative metabolic adverse effects, it of course puts additional weight behind a strict policy for antibiotics prescribing and selling,” he noted.
The International Diabetes Federation launches the World Diabetes Day Guide and Infogram.
The International Diabetes Federation (IDF) is an umbrella organisation of over 230 national diabetes associations in 170 countries and territories.
It represents the interests of the growing number of people with diabetes and those at risk.
The Federation has been leading the global diabetes community since 1950 and it’s activities aim to influence policy, increase public awareness and encourage health improvement, promote the exchange of high-quality information about diabetes, and provide education for people with diabetes and their healthcare providers.
IDF is associated with the Department of Public Information of the United Nations and is in official relations with the World Health Organization (WHO) and the Pan American Health Organization (PAHO).
We are delighted to announce that World Health Day 2016 will be dedicated to diabetes.
According to the IDF website, this announcement was made public by Dr Etienne Krug, WHO Director of NCD Prevention and Control, at the launch of the World Diabetes Day campaign during the World Health Assembly, on May 19.
The campaign will focus on healthy eating as a key factor in the fight against diabetes and a cornerstone of global health and sustainable development.
a) Can help prevent the onset of type 2 diabetes
b) Is an important part of the effective management of all types of diabetes to help avoid complications
Two questions inform campaign activities:
a) How to ensure access to healthy food?
b) Which healthy foods will help prevent the onset of type 2 diabetes and which healthy foods will help effectively manage all types of diabetes?
While WDD 2015 primarily addresses key opinion leaders, the campaign success also relies on the stakeholders of the global diabetes community.
Join in the campaign by downloading the guide and effectively creating the much needed awareness in your community.
I am Olayeye Olumuyiwa Ayokunle. I am a DIABETIC living in Lagos State, Nigeria. I am in my early 40’s & i run a small business.
I was diagnosed with diabetes in my early 20’s. That means i have been managing diabetes for almost 20 years now.
I am married & have a 2 year old daughter. (She is my world) These are my monologues from a diabetic point of view.
Hopefully, you will learn one or two things & also keep you entertained.
Before i go into my monologues, permit me to blow your mind a bit with this question: How many people have diabetes in Nigeria? “.
Now as a Nigerian, our data gathering techniques or process is not top notch but from the one I could gather from the World Health Organization people living with diabetes in Nigeria are estimated to be 1,707,000. i.e One million, seven hundred & seven thousand people & by 2030 it is expected to rise to 4,835,000 i.e Four million Eight hundred & thirty five thousand people.
As observed this is exponential! Now that is the known people.
(The International Diabetes Federation latest figure on Nigeria (3.9 million diagnosed and about undiagnosed 1.8 million cases) can be found here)
In Africa, especially Nigeria, people seldom share their health challenges except when absolutely necessary.
And why is this? Obviously the stigma… I was a victim of this too.
My diabetic status was not something i was willing to let anyone know. It was a closely guarded secret.
So back to our statistics, a lot of people are living with diabetes, they don’t tell, they simply keep mum.
Some are diabetic, they just don’t care as long as they are able to go about their everyday chores.
Some are diabetic & they don’t know yet because Nigeria is a place where a large percentage seldom go for a full medical check up.
An average Nigerian can go for as long as 8 to 9 years without doing a full medical checkup & a large percentage that do, do simply because it was absolutely necessary.
So putting all these into perspective, i can confidently say the unknown diabetic case in Nigeria is up to one million people. So that is to say about 2.5 million people are living with diabetes in Nigeria.
Living with Diabetes in Africa could be a bit challenging especially when one is in Isolation.
Which is why we are coming up with list of people living with diabetes globally that didn’t allow Diabetes affect who they are.
They have proved beyond reasonable doubt through their dedication and exploits that #Diabetes can’t stop us irrespective of our age, race, social status and nationality.
PEOPLE LIVING WITH DIABETES THAT WILL INSPIRE YOU
Mohammad Al-Bahar (Kuwait)
My name is Mohammad, I’m 31 years old, I was diagnosed with diabetes when I was 2 years old (DOD 25 May 1986).
I have graduated from College of Business Administration in 2006, majored in Management Information System / IT, pursued a professional insurance diploma from the Chartered Insurance Institute based in the United Kingdom, used to work in insurance for 5 years and now working in Land Development (Kuwait Direct Investment Promotion Authority).
I’m a Young Leader in Diabetes representing Kuwait and the MENA Region, my project is titled: “Diabetes Ambassadors Program”, which is mainly about spreading awareness about Type 1 Diabetes in Schools, colleges, universities as well as the workplace, to correct the misconception, fight discrimination and share our experience as diabetics about diabetes and how it can be managed and controlled.
My life with diabetes wasn’t easy, I had my highs and lows, in 2011 I went into a hypoglycemia coma, that experience lead me to take a stand and take good care of my health, I have learned carb counting and I’m currently using an insulin pump, I do exercise, extreme sports and have traveled the world.
I have considered diabetes as my friend … realizing that I’m not alone with diabetes, I have met an amazing group of people from all around the world diagnosed with diabetes, and we have learned from each other experiences that together we can control diabetes and live a healthy and a productive life just like everyone else, all we have to do is take certain measures into consideration.
Cherise Shockley (United States of America)
I was diagnosed with Latent Autoimmune Diabetes in Adults in June 2004.
I have been an invited speaker and presenter on the topic of diabetes and social media. I founded Diabetes Social Media Advocacy (DSMA) to empower, support and connect people affected by diabetes.
Through DSMA’s Twitter chats and Blog Talk Radio shows we are able to focus on life with diabetes and at as a pillar that brings the diabetes online community together.
Diabetes is a frustrating condition; it’s up and down, but what helps me stay sane is a lot of prayer and my faith. If I could offer one piece of advice, please do not allow diabetes to steal your joy.
Life is too precious to focus on the inconsistency of this condition; it’s not your fault.
Elizabeth Rowley (United Kingdom)
My name is Elizabeth Rowley. I was born in the United States and have lived with type 1 diabetes for over 20 years.
There are a lot of things that make living with diabetes a challenge, particularly because people with Type 1 diabetes never get a break. It never goes away. We constantly have to test blood sugar, calculate carbohydrates, estimate insulin levels, factor in exercise or activity to avoid high or low blood sugars – not to mention the emotional and psychological effects! This is all exacerbated for someone who is struggling to access their insulin, diabetes supplies, or lacks proper diabetes education – a subject I care deeply about.
I moved to London in 2011 to complete my Master’s degree in International Development and Humanitarian Emergencies at the London School of Economics and Political Science. During my course of study I gained the skills and confidence to set up T1International, a small charity that aims to raise awareness and make sure that everyone with type 1 diabetes has access to everything they need to survive and achieve their dreams. We have come a long way and, along with everyone that lives with or has a connection to type 1 diabetes, I know we can make a difference and address the fact that many people with type 1 diabetes are fighting for their lives daily due to lack of supplies, care, treatment, and education.
Living with diabetes has been a struggle for me personally, but I have done my best not to let it stop me from doing the things I want in life. It has given me a lot of determination and I am confident that by working together we can find creative and sustainable solutions to the complex problems faced by people with diabetes.
Yemurai Sammantha Machirori (Zimbabwe)
My name is Yemurai Sammantha Machirori, a 22 year old lady from Zimbabwe.
I was born on 31 October 1992 and I am currently studying tourism and hospitality management at one of our local colleges.
I was diagnosed with type one diabetes just a month before my 12th birthday, in September 2004. Accepting that I had diabetes was not much of a problem in my first two years of diagnosis, maybe because I was in an environment where I knew that everyone cared about me.
However, things started to change as I started senior school. Meeting new people and trying to fit into a new environment was difficult for both me and my diabetes and hence making my senior school years the worst of my diabetic life.
As I started college in 2012, I started working with my member association more, meeting more young people with diabetes and realising that diabetes was not a condition that only affected “old people”, something that I had been made to believe in senior school by the ladies I learnt with.
“I would like to help other children like me”… is what I told my mum on the night that I was diagnosed with diabetes and I was pushed a step towards my dream as I was approached by my member association to represent Zimbabwe as a young leader in diabetes in Melbourne (2012).
This gesture helped me a lot as I now appreciate my condition even more, and also determined to help other youths with diabetes in my country.
The Ramadan Healthy Mix ended with an increased awareness and sensitization about the need for fasting muslims to eat healthy during the month of Ramadan.
Gift was given to the participant who was able to show her healthy Ramadan diet.
The overall objective of this hashtag is to encourage muslims to fast healthy as against the popular notion of eating heavy and predominantly carbohydrates during fasting.
The Nigeria Diabetes Online Community had about 71 Participants in the #RamadanHealthyMix who created about 489,128 Impressions on Twitter.
A huge thanks to all our partners.
@kayodeolowu multiple international creative arts award winner and partner #RamadanHealthyMix. He can be reached on www.kayodeolowu.com
Huntella is a multiple winning online wholesale and retail outfit and partner #RamadanHealthyMix. They can be reached on www.huntella.net
1one4.com is the hub of Muslims, from Nigeria to the world. With its wide range of content aiming not only to inform muslims on issues that affect them, but also educate all people, muslim or non-muslim alike.
The 21st of May was a memorable day for the students of Ogun State as the ministry of health launched its School Health Cadet program.
The School Health Cadets involves cross section of secondary school students from across Ogun State.
Their responsibility is to create a health conscious Community through their various activities in their schools and respective communities.
The Nigeria Diabetes Community partnered with the ministry of health to train the students on Diabetes education and Advocacy with the aim of creating adequate diabetes awareness at community level.
The Honorable Commissioner for Health Dr. Olaokun Soyinka charged the children to be health ambassadors in their communities creating passionate change that will make the communities a safer environment and healthier.
Among distinguished guests present at the launch are the representatives from Ogun State ministry of education, Dangote Groups, Talabi Diabetes Center, Unity Bank, Eli Lilly Pharmaceuticals and The Nigeria Diabetes Community .
A team of 10 participants to include students, a school teacher and school health worker from 10 schools across the 3 geographical zones in the states were trained.
It is expected that the team will translate the knowledge acquired during the training to their colleagues at school and their respective communities.
Followup on their activities will be done through the school health unit of the department of public health.
Our Profound Gratitude goes to everyone who has supported this program and made it a reality most especially the sponsors of the diabeducation project:
Eli Lilly Pharmaceuticals
Mr Olumuyiwa Talabi – Talabi Diabetes Center
Dr Gbadebo Saba – Owokoniran Memorial Hospital
Dr Dunni Osofisan
Dr Okubenna Oladunni
Dr Tosin Ojo
Alhaja R.O Balogun