Category Archives: News

Woman Living With Diabetes No Longer Needs Insulin After Bioengineered Pancreas Transplant

The major problem with type 1 diabetes is that the body produces antibodies that attack the body’s healthy islet cells in the pancreas which produces insulin. This limits insulin production making the body the body unable to make use of glucose gotten from diet leading to high blood sugar. The patient then has to makes rely on insulin injections or pumps to survive.

Before now, several research works have being aimed at transplanting islet cells from deceased donors into the liver but this has not been ideal The liver can only take few islet cells and with risk of bleeding.
Recently, researchers at the University of Miami Diabetes Research Institute have tried another location – the omentum, a fatty membrane in the belly.

A 43 year old single mother with a 25 year history of type 1 diabetes has been off insulin for over a year following islet cell transplant in the omentum. Before the transplant, she was said to have been on about 33 units of insulin per day. No surgical complications were observed during the procedure.

The researchers said

“The cells began producing insulin faster than expected, and after one year she is doing well and doesn’t need insulin injections”.

“We’re exploring a way to optimize islet cell therapy to a larger population. This study gives us hope for a different transplant approach,”

Dr. David Baidal, assistant professor in the University of Miami Research Institute who led the study said. The research is the first step towards developing a mini organ called BioHub.

The BioHub would be like a home to the islet cells providing it with blood supply and nutrition, making it easier to remove in cases of complications. The researchers plan to test the use of omentum as a site in 5 new patients.

IMPROVED LIFESTYLE
Baidal explained that

“Her quality of life was severely impacted. She had to move in with her parents. And, if she traveled, she had to travel with her father”.

This is indeed good news.
This is a step in the positive direction for about 422 million people worldwide living diabetes. It would also markedly save cost for insulin in the long term.
More information of this ground breaking research headed by Dr David A. Baidal can be seen in the New England Journal of Medicine.

Meanwhile, you can win an all expense paid trip to a Diabetes youth camp in Ghana. Click here for details

Diabetes Advocates Protest Against High Insulin Prices

When Frederick Banting discovered Insulin in 1922, he never thought it’s prices would be as high as what is obtainable today.

Source: T1International

Insulin is a vital drug that is needed for people living with diabetes to survive but the increasing prices have caused people to ration insulin doses and skip injections causing poor control of their blood sugar.
On Saturday, 9th of September, 2017, T1International, an advocacy group for people living with type 1 diabetes around the world and People of Faith for Access to Medicines (PFAM) along with other stakeholders led a demonstration in front of Eli Lilly and Company International corporate headquarters in downtown Indianapolis. The day for online action was September 8th, 2017.

“We spend more money on diabetes than on our house payments,” Indiana resident Erin Roberts said.
Mike Hoskins who was at the protest said on his blog that he was spending $700 per month to get 3 vials of insulin in 2015 and that was more than half of housing cost per month and he had to borrow from a friend.

Consumers of these products are frustrated and have come out in mass to express their feelings. Parents of children living with diabetes and other concerned persons participated in the protest. Some people lamented that they have to pick between buying their groceries and buying insulin.

Some protesters at the demonstration.
Source: T1International

The 3 main pharmaceutical companies producing insulin are Eli Lilly, Novo Nordisk, and Sanofi and they’ve continually increased the prices of insulin.
March 2017 saw another increase of Eli Lilly’s insulin product ; Humalog and Humilin by 7.8 percent.

Lilly is said to have raised the price of its version of insulin by over 300% over the past seven years. A U.S. patient’s out-of-pocket cost for a month’s supply of Eli Lilly’s Humalog can be over $400 (About 144,000 Naira).

In July 2017 it was reported that Lilly had a 35% increase in quarterly profits: $1+ billion, on $5.82 billion revenue. Though Eli Lilly recently started a patients assistance program when people complained about the costs, it is still grossly inadequate as only a small number of people would benefit.

Humalog has seen a 1123 percent increase in price since June 1996.
The insulin makers have also argued that its costs a great deal for advancements to produce new and better insulin.

Photo credit : Business insider

An Eli Lilly spokesperson responded in an email saying, “We are pleased that people in the diabetes community are engaged in this issue, and demonstrations are one way to do so. It will take continued effort across the healthcare system to affect real change, and Lilly is committed to working with others to make it happen.”

People with diabetes are asking Eli Lilly for three things:
• Be transparent about how much it costs to make one vial of Humalog insulin
• Be transparent about your profits from each vial
• Lower the price of insulin

So many people are dying from diabetic ketoacidosis because they can’t afford insulin.
For a long time, Africa was thought to be safe from diseases called “diseases of affluence,” like diabetes which plague the Western world but this is now known to be false as there is an increasing statistic of people living with diabetes and this includes both rich and poor.

As at 2013, the Nigerian government was reportedly spending $500 million (78.5 million Naira at that time) on importation of insulin annually. Insulin access is still a major problem in developing countries too.

On the pages of Indystar on Saturday

You can still lend a voice to the cause via social media.
Hashtag is #Insulin4all . You can get more information on Facebook and other social media sites.

Hashtag

SPONSORING ORGANIZATIONS OF THE DEMONSTRATION:

T1International

People of Faith for Access to Medicines

Public Citizen 

Patients for Affordable Drugs

Merck Diabetes and Hypertension Awards

Merck Diabetes Award

All medical undergraduates and postgraduates are invited to apply for the

Merck Diabetes Award 2017
Theme: Every Day is a Diabetes Day

Please submit a concept paper about:

  • How to improve the awareness about Diabetes Early Detection and Prevention in your country.
  • How to encourage your society, scientific community, local authorities, media and relevant stakeholders to Think and Act on Diabetes Every Day.
  • Your ideas of developing new policies, strategies, social media campaigns and more.

 

Merck Diabetes Award 2017

is:

“Postgraduate Diabetes Diploma with University of South Wales. Winners will be invited to attend the Merck Africa Luminary on 24th-25th October, 2017 in Cairo, Egypt to receive the award”.

Merck Diabetes Award is being rolled out in many of the African and Asian universities as part of our commitment to building diabetes capacity and improving access to quality and sustainable healthcare solutions in developing countries.

The aim of Merck Diabetes Award is to create a Diabetes Experts Platform across the globe.

Please submit your one page concept paper to:
submit@merckdiabetesaward.com

Submission deadline is 31st July 2017

Entry requirements:

Postgraduate Diploma

Health professionals, both UK and overseas, with an honors degree or equivalent (including international qualifications) are eligible to apply for the PG Diploma Diabetes course online.

Non graduates are also encouraged to apply (applicants will be asked to submit a piece of work for assessment to confirm that they are able to work comfortably at degree level).

Applicants should submit copies of the following with their application:

  • qualification certificates
  • one written reference
  • English language qualification (IELTS 6.5 or equivalent) please see University of South Wales for further details

Merck Hypertension Award

All medical undergraduates and postgraduates are invited to apply for the

Merck Hypertension Award 2017

Theme: What the Healthy Heart needs

Merck Hypertension Award is being rolled out in many of the African and Asian universities as part of our commitment to building healthcare capacity and improving access to quality and sustainable healthcare solutions in developing countries.

The aim of Merck Hypertension Award is to create a Hypertension Experts Platform across the globe.

To raise the required awareness to control and prevent hypertension, countries need systems, policies and services in place to promote universal health coverage and support healthy lifestyles: eating a balanced diet, reducing salt intake, avoiding harmful use of alcohol, getting regular exercise and stopping the use of tobacco.

Please submit a concept paper about:

  • How to improve the awareness about hypertension control and prevention in your country.
  • How to encourage your society, scientific community, local authorities, media and relevant stakeholders to think and act on Hypertension Every Day
  • Your ideas of developing new policies, strategies, social media campaigns and more.

Merck Hypertension Award 2017
is:

“Postgraduate Diploma in Preventive Cardiovascular Medicine with University of South Wales. Winners will be invited to attend the Merck Africa Luminary on 24th-25th October 2017 in Cairo, Egypt to receive the award”.

Please submit your one page concept paper to:
submit@MerckHypertensionAward.com

Submission deadline is 31st July 2017

Entry requirements:

Postgraduate Diploma

Health professionals, both UK and overseas, with an honors degree or equivalent (including international qualifications) are eligible to apply for the PG Diploma Diabetes course online.

Non graduates are also encouraged to apply (applicants will be asked to submit a piece of work for assessment to confirm that they are able to work comfortably at degree level).

Applicants should submit copies of the following with their application:

  • qualification certificates
  • one written reference
  • English language qualification (IELTS 6.5 or equivalent) please see University of South Wales for further details

For more information visit Merk’s Official website

NGDOC D-Meetup 2017

The Nigeria Diabetes Online Community is organizing a D-Meetup for Children living with diabetes in Nigeria.
The aim of the D-Meetup aims to create an amazing experience for children living with diabetes in a medically safe environment and will run over a weekend.

The activities will centre around children living with diabetes between the ages of 12 – 21 years to meet and share their experiences with one another as they learn to take responsibility for their health status and also to create in them a “I can do it” attitude as they improve on their self-esteem.

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This meetup will include meeting with People living with Diabetes Globally, Nutritionist, Paediatric endocrinologist; Tourism; Games; Dinner amongst others.

It also will foster their physical activities and more controlled access to food relative to their experience at home while monitoring a good glycemic control.


Interested in partnering with us contact us on ngdoc@gmail.com or ngdocdmeetup@gmail.com

Do you know any child living with diabetes within the age of 12 – 21 years kindly encourage them to fill the form to participate.

Are you interested in sponsoring this event or volunteering your time and talent to make this event a success? Kindly fill this form.

POLITICS OF DIABETES IN NIGERIA

The recent series of tweets by the USA senator and presidential aspirant, Senator Bernie Sanders, ‘attacking’ insulin makers, that followed a letter sent by him and his counterpart in the House of Representatives to the Department of Justice and Federal Trade Commission on the need for investigating insulin makers for price collusion was a result of his identification with diabetes (which runs in his family) especially during his campaign for Democrats nomination.

Bernie is not the only USA politician advocating on behalf of the People Living with Diabetes (PWD) , Senator Jenne Shaheen who is the leader of the US Senate Diabetes Caucus was quoted to be committed to ensuring that diabetes is a ” priority for legislation no matter what happens in the election” of 2012.  Her commitment could also be linked to her identification with her diabetic granddaughter.

Moreover, the revelation by the UK Prime Minister, Theresa May, on her Type 1 diabetes status in addition to the functional relationship between the UK Parliament and several diabetes groups in the UK points to the fact that fight for the people with diabetes is a major cause for UK politicians. The act of identifying with diabetes and other non communicable diseases by politicians is a common trend across the developed countries, and this has propelled them to advocating, legislating and making policies for the education, prevention, diagnosing and management of diabetes mellitus in their respective countries.

One of the tweets by Bernie Sanders on his twitter handle @sensanders reads “in the richest nation in the world diabetes patients are being forced to decide between eating and paying for the drugs they need”.

I was prompted to respond by comparing the condition of the people with diabetes (PWD) in poor and unstable nations with those in rich countries that are being sympathised with.

Also, my reaction to the letter by Bernie and his colleague on insulin price is by asking for who are to be the defenders for the “weak and helpless” people living with type 1 diabetes (PWT1D) in poor countries like Nigeria.

My last response was inspired by the attitude of politicians across Africa especially Nigeria where disclosure of true health status of politicians seems abominable whether they are being affected by common diseases or not.

Their practice is to embark on medical tourism to developed countries for treatment and management of such diseases secretly  while people only engage in speculation about their health status . For instance, former President Olusegun Obasanjo was forced to disclose his battle with diabetes over several number of years by his need to get votes for his successor who later died in government due to a then undisclosed ailment. This was at the tail end of his (Obasanjo) eight year tenure.

The failure of Nigerian politicians to identify with non-communicable diseases especially diabetes, by which many of them are believed to be affected, and their ability to travel abroad for treatment make them not to have any inspiration or encouragement to make any specific serious legislation, policy or advocacy that is needed to support the common people on the care and management of diabetes, as many are being afflicted and killed by the disease due to their helplessness.

This is evident in the absence of any specific health policy or program on diabetes, lack of appropriate medical facilities for diagnosis and care, inadequate funding for non-communicable diseases, shortage of diabetes specialists and caregivers, inadequate education on prevention and management of diabetes, absence of any parliamentary resolution on diabetes and absence of any regulation on access to and price of diabetic drugs, (especially insulin) among others.

However, according to International Diabetes Federation (IDF), as at year 2015 out of 415 million people living with diabetes in the world, 75 percent are in the poor and middle income countries with Sub-Sahara Africa accounting for 14.2 million . It is shown that prevalence rate of diabetes in Nigeria is 1.9 percent for adults and 3 out of 100,000 children while around 949, 900 persons are undiagnosed. Among 5 million people that die due to diabetes annually across the world Nigeria accounts for more than 40,000. Relatively, Nigeria leads in the number of incidence of and mortality rate from the disease in Africa.

Meanwhile, the current economic condition, a result of economic recession, in the country is making self management of diabetes unaffordable for the people living with diabetes.

The reliance on importation of all the much needed diabetic supplies,  continuous fall in the exchange rate of Naira to foreign currencies, galloping inflation and dwindling real income have all contributed to unaffordability and inaccessibility of the supplies most especially insulin.

The price of each of the items has skyrocketed to about 150 percent increase within a short period of eight months. Choosing myself as a typical sample of an average  person living with diabetes in the country , my monthly costs of supplies currently within Lagos metropolis could be broken down as follows :

Insulin ( Mixtard of 100 IU)              N5500 per vial

Syringes                                                       N2500 per pack of 100 units

Glucometer (Accu-chek Active)    N8000

Meter test strips                                    N4600 per pack

Diabetic multivitamin                        N3400

All these prices are only obtainable within Lagos which is the major commercial city in the country, but in other cities and towns most of the supplies are either much more costlier or not totally available. Meanwhile , my monthly income stands at around N25000 out of which I spend around N16000 on the supplies (64 percent) . The cost of transportation and other implicit costs are yet to be included.

Despite all the available statistics on diabetes, though actually underestimated because of absence of credible medical data gathering in the country, and the plight of the people living with diabetes in managing the condition there is no any serious political will on the part of policy makers, and in spite of signing up with Global Action on Non-communicable diseases, to help the people with diabetes out of the challenges being faced in the need to lead fulfilled lives, and reduce the level prevalence of the disease.

Nigeria is only chosen in this article as a reflective sample for all the poor and politically unstable countries of the world, which means that the conditions of the people living with diabetes in these countries, especially in Africa, need urgent and serious actions on the part of their politicians on supports for adequate management as well as on the need for measures for prevention to reduce the rate of prevalence.

So, the question still remains as who will fight for the ‘weak and helpless’ people living with diabetes in the poor countries?

Olafimihan Nasiru Titilope is living with diabetes can be reached on nasoola77@yahoo.com

 

The article posted is strictly the responsibility of the author. NGdoc  will not be liable for any errors, omissions, or any losses, injuries, or damages arising from its display or use. This article is featured on an as-is basis.

TYPE[1]WRITER TO FACILITATE INSULIN ACCESS TO NIGERIAN CWDS

This was the start of a beautiful friendship and the creation of our diabetes project. Back in 2013 I had the pleasure of meeting Adejumo Hakeem from Nigeria.

We’d been in constant communication prior to the International Diabetes Federation Conference in Melbourne as I’d managed to win their essay competition, ‘Diabetes in Nigeria: Protecting the Future’.

I even went on to write my masters on ‘The Relationship Between Urbanisation and Type 2 Diabetes: a human rights-based approach to health in Nigeria’. So here we were, online friends from New Zealand and Nigeria, finally able to cross the ocean and meet in person.

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It’s been 6 months since the book was launched and the sales are still doing great. The profits from my book go directly to Adejumo at NGdoc to aid children with type 1 diabetes in Nigeria who do not have access to the supplies they need to survive. There are already stories of young children who we, and our consumers, have supported. If you have bought a book – YOU helped a child!

Our very first child was enough to spur us on, the fact that we’d made a difference in someone’s life is very humbling. Oluwatimileyin Daniel was 14 years old and in a state of diabetes ketoacidosis in hospital as his family had no money to buy insulin. Through our partnership we were able to pay for both the insulin and glucometer test strips he needed. He was lucky, many are not.

If you want to help us make a difference you can buy the book, or the cheaper e-book version on Amazon. If your child has type 1 diabetes they will hopefully love the book and be saving another child at the same time

Culled from type1writerblog 

Carrie Hetherington can be contacted here

FDA APPROVES ARTIFICIAL PANCREASE SYSTEM.

According to the American Diabetes Association, the FDA approved the first hybrid insulin delivery system on the 28th of September, 2016. 

This critical step, according to the ADA website in the development of an artificial pancreas is an important milestone for people with type 1 diabetes.

The MiniMed 670G is the first pump-sensor system to automatically adjust basal insulin levels, up or down, based on continuous glucose readings from an integrated continuous glucose monitor.

Patients will continue to make insulin dosing decisions at mealtime, with the MiniMed 670G providing dose recommendations based on the patient’s blood glucose levels and trends.

Patients will also need to perform finger-stick glucose checks for calibration of the device. 

The system is appropriate for anyone who is currently using or is a good candidate for an insulin pump. 

The FDA has approved the MiniMed 670G for people age 14 and older.

We are excited for this advancement, and we look forward to the development of the next phase of automated systems that can provide bolus doses of insulin. We envision that these incremental innovations will lead to a fully automated closed-loop system to provide optimal glucose control and independence for people with diabetes.

HOW DOES A CONTINUOS GLUCOSE MONITOR (CGM) WORK

CGM is a way to measure glucose levels in real-time throughout the day and night. 

A tiny electrode called a glucose sensor is inserted under the skin to measure glucose levels in tissue fluid. 

It is connected to a transmitter that sends the information via wireless radio frequency to a monitoring and display device. The device can detect and notify you if your glucose is reaching a high or low limit.

To engage with the Diabetes Online Community follow The Nigeria Diabetes Online Community on Facebook NGDOC and on Twitter @theNGdoc

– See more at: http://www.diabetes.org/newsroom/press-releases/2016/american-diabetes-association-FDA-approval-first-hybrid.html?referrer=https://t.co/VkIIhiSJFd#sthash.qkMPxHBk.dpuf

Raising a child living with diabetes in Africa: Challenges and Motivations

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On May 27th The Nigeria Diabetes online Community conducted it’s monthly chat dedicated to children living with diabetes in Africa.

The chat that coincides with Children’s day in Nigeria drew participants from Nigeria, UK, South Africa and Ghana.

The children’s day chat reflects the reality that faces us as a nation and africa as a continent on the need for a vibrant healthcare sector to combat the scourge of diabetes.

All our participants have wards living with diabetes (we encourage parents and guardians to get their wards involved in social peer support chats online).

Most wards view living with diabetes as a burden (stressful,frustrating, depressive and expensive – in the words of pearl who has young relatives living with diabetes) with a few having a good insight of the condition.

Large percentage of our wards living with diabetes seemingly initially have a feeling of being the only ones with such condition in the world.
(A typical reflection of poor awareness of other children living with diabetes)

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Living with diabetes for children has been noticed to be emotionally challenging and it’s been suggested by experience that more interaction and peer support works in Ghana with listening ears producing better results  than criticisms.

Parents and guardians have been advised to stay involved in their children’s care even if such wards is able to manage his/her diabetes.

At this point parents should be aware of that their support, respect and love for each other has a direct impact on their child’s metabolism (a good thesis for research)

It was also noted that there’s a constant battle of emotions as the children hit their teens with their tendencies to want to fit in like their friends.

In cases when their emotions are really all over the place, a constant show of love, mentoring and continuous education about diabetes has been noted to be very helpful.

It was unanimously agreed by all participants that interacting with other children living with diabetes worldwide is very helpful with NGO’s and government being actively involved in ensuring living with diabetes for our children doesn’t end up as a death sentence.

We graciously call on the minister of health in all african countries to emulate the South Africa government who is said to provide free medications to include insulin and glucose strips.

The international diabetes federation life for a child has been commended for their active support in resource poor settings where insulin, glucometers and teststrips are provided for free.

We also call on governments to ensure these supplies gets to the children import tax free.

Wouldn’t it be great to see life saving medications donated for free exempted from import tax which could be enormous?

We wish to thank all our participants for their contributions and commitments to ensuring an healthy life with diabetes is achievable by our children.

Do you have or know any child living with diabetes?
Kindly get through to us on our platforms and we will be glad to connect.
thengdoc@gmail.com
Facebook: NGDOC
Twitter: @thengdoc

NGdoc partners with Sola Giwa Initiative on Community Health Screening in Lagos State

NGdoc will be partnering with Sola Giwa Initiative on a 4day public health screening.

This gesture according to Sola Giwa is part of his commitments at ensuring the deliverance of democracy.

The public health screening will strictly be on diabetes and high blood pressure issues which will afford participants to be aware of its symptoms, damages and preventions to avert any health havoc.

Importantly, this program aims to improve health awareness as well as overall wellbeing of the people in his constituency through a 4-day public enlightenment and screening in 4 different locations.

Its intended target audience daily is between 500 making it 2,000 ground total target audience.

The event has been scheduled to hold at the four different venues as follows:

Day1
23/03/2016
Anikantamo Multi-purpose Hall
10am – 3pm

Day2
24/03/2016
Campus mini stadium
10am – 3pm

Day3
25/03/2016
Lafiaji community centre
10am – 3pm

Day4
26/03/2016
Eleganza sport centre
10am – 3pm

Interested in volunteering? Please send an email to ibironke_odewale@yahoo.ca

Why Africa needs the Global DOC

It is with a heavy heart that I share the tragic story of a promising young boy with type 1 diabetes.

I met Durojaiye Bola through the Pediatric Endocrinologist of The Olabisi Onabanjo University Teaching Hospital (OOUTH) a year ago. This meeting coincided with our peer support program for children living with diabetes at the same institution where we met online with Jack Terschluse of Penpals United.

Although Durojaiye was diagnosed with Type1 diabetes his family was without the means to support the expense of his treatment and medication. He was on our list for support, next in line to Omolade who, thanks to T1International through its diabetes warrior initiative underwent a vocational training to help her pay for her insulin needs and later a partner NGO called Priceless Jewel, now supports with her insulin and university education from a kind philanthropist.

If only we had been able to support Durojaiye sooner. Last Friday I followed a friend to the ER of the teaching hospital and found him with burn scars on all of his limbs.

Apparently Durojaiye had fallen into an hypoglycemic coma at a religious center. In a bid to bring him back to life, his digits were burnt badly in fire by the religious members. This shock reminded me of the huge importance of educating religious leaders on diabetes. The NGdoc submitted a project proposal 2 years ago to a foundation for support of such an education initiative but unfortunately we never got the funding.

Right now Durojaiye has been referred to a plastic surgeon in a bigger hospital with the possibility of amputation. With tears on their eyes his parents told me categorically that they cannot afford it. They said that sending him to another hosptial will be like a death sentence.

A team was constituted by NGdoc with initial finances being given by the association. The team also has support from T1international.

The aim of the team is to ensure:

1) Optimal care for Durojaiye, including psychotherapy and rehabilitation

2) Financial support to cater for a substantial part of his bills

3) A strategy to prevent such occurrences from happening again

4) An advocacy plan to ensure liable children with diabetes have access to insulin and other essential consumables.

The team is comprised of:

Adejumo Olamide – NGdoc/Access Alliance

Elizabeth Rowley – T1International/Access Alliance

Odewale Ibironke – NGdoc

Dr Adekoya Adesola – Pediatric Endocrinologist/NGdoc Social peer support for CWD in OOUTH coordinator

Dr Ajose Femi – Surgery

Dr Safiriyu Isreal – Medicine (Endocrinology)

Adesanya Adebukonla – Medical Student

This is a clarion call to the Global DOC. There must be more focus on Africa. How many young boys and girls in Africa must go through the same traumatic experience before our community takes action?

We need to address poverty, lack of access and lack of diabtetes education. We must support community based organizations centered around caring for people with diabetes, encourage social peer support and help make the lives of children living with diabetes a meaningful one.

Interested in supporting? Click here

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Interested in supporting? Click here