Category Archives: Information

Our Emotional Meeting with Omolade a Nigerian Child with T1DM

From Left to Right (Dr Adekoya, Omolade, Her Mom)
From Left to Right (Dr Adekoya, Omolade, Her Mom)

 

Omolade is a 13 year old Nigerian Type 1 DM.
For her having Diabetes Mellitus wasn’t something she bargained for. Meeting with her was facilitated through our collaborative partnership with the Paediatric endocrinology department of the Olabisi Onabanjo University Teaching Hospital (O.O.U.T.H), Sagamu, Ogun State, Nigeria.

Shagamu

 Dr. Mrs Fetuga (Consultant Peadiatric Endocrinologist and Omolade during one of her clinic sessions)

Diabetes mellitus type 1 (also known as type 1 diabetes, or T1DM; formerly insulin dependent diabetes or juvenile diabetes) is a form of diabetes mellitus that results from autoimmune destruction of insulin-producing beta cells of the pancreas. The subsequent lack of insulin leads to increased blood and urine glucose.
The classical symptoms are frequent urination, increased thirst, increased hunger, and weight loss. (source wikipedia)

injecting insulin

Tears of joy flowed through her eyes as she went through our album of PWDs all over the world who identifies with her, understands how she feels and sees her as family.

Omolade is a girl filled with bitterness wondering why God had given her a disease she has to live with forever despite adequate explanation and support from her HCP.

Her hope was re-kindled knowing and practically seeing that she is not alone and she has thousands of children like her all over the world with T1DM, including adults.
This gives us an idea of a need for peer support for T1 PWDs in Nigeria where everyone can relate, interact and socialize.

Shagamu

 

Speaking with her mom about the financial implication on the family, she explains she spends N1,400 ($9) per vial and omolade uses 6 vials in a month making a total of ($54); this excludes the cost of glucometer and consumables.
This cost for a low income family in a developing country is burdensome and we aim through our partners to make this available thereby putting a smile on Omolara’s face and that of the family.

We have been in constant touch since our meeting on the 4th of April and we have seen the joy associated with having a family united by D.

We wish to use this medium to appreciate the Peadiatric Endocrinology unit of Olabisi Onabanjo University Teaching Hospital, Sagamu, Ogun State, Nigeria for their support.

For every Nigerian T1DM Child we are committed to giving them the support they deserve.

Here’s a call to HCPs, Health Care Givers, Diabetes Advocates and PWDs to identify with T1 children towards giving them the emotional support needed to encourage and motivate them towards a proper self management of D.

Do you know any Type 1 Nigerian Child please feel free to inform us.

Follow us on @theNGdoc or email us thengdoc@gmail.com

Type 1 Diabetes Mellitus (T1DM) in Nigeria: Rare or not obvious?

Hope

Type 1 diabetes is a type of Diabetes Mellitus characterized by loss of the insulin-producing beta cells of the islets of Langerhans in the pancreas, leading to insulin deficiency, it can affect children or adults, but was traditionally termed “juvenile diabetes” because a majority of these diabetes cases were in children.

The true burden of T1DM is not really known, but a difference in the pattern and outcome of T1DM in Nigeria compared to other developed countries seems to be present.

Most DM screening data available is not population-based and is of limited value for making generalizations about Diabetes in the Nigerian Children.

According to Dr. Mrs Fetuga,Consultant Pediatric Endocrinologist at the Olabisi Onabanjo University Teaching Hospital in South-West Nigeria who researched into the prevalence of Type 1 Diabetes Mellitus cases at her center, only about 8 cases of T1DM have been seen with most presenting with Diabetic Ketoacidosis (a potentially life-threatening complication in people with diabetes, it happens predominantly in those with type 1 diabetes, but can occur in those with type 2 diabetes under certain circumstances. DKA results from a shortage of insulin; in response to which the body switches to burning fatty acids and producing acidic ketone bodies that cause most of the symptoms and complications).

We wondered if T1DM is actually rare in Nigeria or our pattern of screening that excludes children vis a vis poor awareness of DM & its types among natives are responsible for the low data on T1DM.

She also raised concerns about poor knowledge and awareness of T1DM among mothers making it difficult for them to even explain what is wrong with the child when symptoms are demonstrated (loss of weight,frequent urination,increased thirst and increased hunger)these symptoms may develop rapidly (weeks or months) in type 1 diabetes.

Most parents also default follow-up after treatment with a high level of non-compliance to insulin use..

The International Diabetes Federation “Life for a Child” Programme was established in 2001 with support from the Australian Diabetes Council and HOPE worldwide and is an innovative and sustainable support programme in which individuals, families and organisations contribute monetary or in-kind donations to help children with diabetes in developing countries.

Here’s a call to HCP, Advocates, PWD to clamor for a more active community research into the epidemiology of T1DM in nigeria, passionate awareness, care and proper advocacy.

We at @theNGdoc are resolved towards committed advocacy for T1DM as well as the other types of DM and would appreciate any information on any child diagnosed of T1DM.

We are currently partnering with Elizabeth of T1international and the endocrinology unit of the pediatric department of Olabisi Onabanjo University Teaching hospital towards creating adequate grass-root awareness and proper care for T1DM children in Nigeria.

With these collaborative efforts we hope towards promoting grass root awareness for T1DM in Nigeria and adequate care for those with it.
To reach us please follow us on twitter @theNGdoc or send us an email thengdoc@gmail.com

Lets Keep the Hope Alive.

Image Credit: everynigerianchild

WORLD DIABETES DAY CHAT NOVEMBER 14, 2013.

thengdoc

WORLD DIABETES DAY CHAT NOVEMBER 14, 2013.

According to the International Diabetes Federation, health in sub-Saharan Africa has been traditionally dominated by infectious disease, HIV/AIDS, and poverty. With rapid urbanisation, non-communicable diseases (NCDs) like diabetes are quickly becoming a new priority for health in the region. As urbanisation increases and the population ages, diabetes will pose an even greater threat.

In 2011, 14.7 million adults in the Africa Region are estimated to have diabetes, with a regional prevalence of 3.8%. The range of prevalence (%) figures between countries reflects the rapid transition communities in the region are facing.  The highest prevalence of diabetes in the Africa Region is in the island of Réunion (16.3 %), followed by Seychelles (12.4%), Botswana (11.1%) and Gabon (10.6%).  Some of Africa’s most populous countries also have the highest number of people with diabetes, with Nigeria having the largest number (3.0 million), followed by South Africa (1.9 million), Ethiopia (1.4 million), and Kenya (769,000).

Africa is currently the second largest mobile phone market after Asia, with more than 700 million mobile connections and a projected rise to almost 1 billion by 2016. More people on the continent have been introduced to the internet via mobile phones, and currently, Africa’s mobile data usage amounts to 14.85% of the total internet traffic – second only to Asia. In view of this, social media health platforms are rising  with social media becoming an integral part of modern society fostering a more intense, engaging and democratic discussion. Social media has moved beyond being a tool for young individuals to share their private lives (pictures, messages) to fostering serious discussion on technology, health and business.

The diabetes online community in Africa started up with Nigeria and South Africa joining in the world diabetes day 16hour twitter chat in 2012 organized by the Diabetes Social Media Advocacy in the United States of America, (http://diabetessocmed.com/). This chat featured about 6 countries, 449 participants, about 5 thousand Tweets, 6million impressions and reaching over 14 million people.

With Africa’s mobile subscriber base estimated to grow annually by a significant 30 percent, utilization of social media in establishing online health peer support communities in Nigeria and Africa has helped create awareness, educate and act as a great social media peer support.

 

WDD 2012 PARTICIPANTS
WDD 2012 PARTICIPANTS

 

To celebrate this year’s World Diabetes Day (WDD) on November 14, the Global Diabetes Communities spearheaded by The Diabetes Community Advocacy Foundation formerly Diabetes Social Media Advocacy is coordinating a 24 hour global twitter chat for diabetes awareness and to celebrate the world diabetes day.

World Diabetes Day
World Diabetes Day

This 24hour twitter chat which will involve diabetes organizations like the Australian Diabetes online community, Blueprint Barbados,100 Campaign, Great Britain Diabetes online community, diabetes daily , diabetes hand foundation and the Nigeria diabetes online community aims at achieving a global conversation on the state of diabetes care.

The Nigeria Diabetes online community will be moderating the chat from 3pm-4pm E.S.T (9pm-10pm local time) and we will be discussing the Theme: Diabetes Prevention and Care in Nigeria: the past, present and future.

This is a clarion call to all people living with diabetes, diabetes advocates, and health care providers, government health agencies to join the global diabetes movement and get their voices heard.

The Chat will run from 0:00hrs -24:00hrs E.S.T (5am Nov 14- 5am Nov 15 local time). Join the Nigeria diabetes online community from 8pm-9pm Nov 14 as we discuss issues pertaining to diabetes in the continent.

Adejumo Olamide Hakeem

 

 

 

Blue Friday Personality of the Week

BLUE FRIDAY PERSONALITY OF THE WEEK

In November 2010, Cherise Shockley cordinator of @DiabetesSocMed founded the Blue Fridays Initiative to spread the word about World Diabetes Day and Diabetes Awareness Month.

Diabetes is more than just a national issue; it is a world epidemic. Blue Fridays brings the global diabetes community together to raise awareness and celebrate World Diabetes Day.

Cherise  received several emails and Facebook messages asking her to extend Blue Fridays and in december 2011, she honored the request she received from many people throughout the diabetes community by asking everyone to wear something blue every Friday.

Inspired by the Cherise’s #bluefriday success @hadejumo started the blue friday personality of the week #bluefridaypow where he aimed at showcasing and profiling people every friday who are dedicated to creating diabetes awareness as a way of promoting diabetes awareness, blue friday and reducing the stigma associated with diabetes in nigeria and africa in general.

This program which featured so many people (PW/OD) was generally accepted by nigerians and henceforth will be continued (from the 14th of March, 2013) by @theNGdoc and @diabeticare.

If you are a PWD,a Diabetes advocate or an interested individual and you want to be featured as our #bluefridaypow (Blue Friday Personality of the week) send your Your Name, when diagnosed if a PWD if not skip, your activities, profession, works (blogs, research or articles on D) or what you do generally!

Should you have any quotes or sites we can quote from, we’d gladly do that.

Send a picture of you in blue and with answers to the questions above to thengdoc@gmail.com.

Expect a responce from us within 3 working days.

More info on WDD Blue Fridays Initiative bluefridays – Diabetes Social Media Advocacy can be found here
Thank you and keep the awareness alive.